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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Saturday, June 4, 2016

Most recent activities and happenings

Moving into the hotter months means the splash pad opens up. Asher loved it. He would try and grab the streams of water but could never hold on. At one point I sat him behind an arching stream. Every time it shot out it startled him, but he loved the surprise so I let him stay. The girls loved running right down the center and Eden got a surprise enema when she positioned her booty over the spray. I don't think she meant for that to happen because she squealed and told the little girl next to her not to stand that way. 


Hahahahaha..

Once May gets cold she doesn't have any desire to be in the water anymore. So she watched from the sidelines. 
Gator is really enjoying scouts. Besides the Derby they did this boat racing called the Raingutter Regatta. 
He really did well and placed 2nd for the Bears. Way to go Gator!!

Yesterday was national donut day AND we discovered that Children's Miracel Network Headquarters is right here in our very own state. Alex is the 2016-2017 Champion Child for Primary Children's Hospital. What a great excuse to visit HQ and take donuts. We met Brooke, she took us on a tour of the whole building. It looked like a really cool place to work. We are so thankful for all their hard work that makes it possible for hospitals around the United States and Canada able to support patients like Gator and MayLee. 










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