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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, January 4, 2018

December 11

The kids had their Christmas sing along. It was darling to hear the little French songs they performed along with more traditional songs. Don't be fooled by the little number... They had to bring in one grade and one track at a time. This happens to be C track first graders. There are gobs of kids, so they can't have all those parents kids at the school at the same time. It's a fire hazard. 

Then we ran off to a cardiology appointment,,, 


Everything turned out amazing. Alex is looking forward to a great Biopsy in January. 

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