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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Monday, January 22, 2018

New Year Eve

Happy New Year Eve!!! We went to a friends house for a visit, which was perfect. I wasn't feeling super great and having everything taken care of made the night easy and enjoyable. Then we were home for the twelve o'clock time and then right to bed. But May sure looked cute for the day. 



We have certainly had a pretty fantastic year and have been blessed with great health. We accomplished so much, and have so much more we are anticipating in the next. We wish everyone the best of 2018...

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