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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Tuesday, January 30, 2018

MayLee's 5th Birthday

How do the years of my child's life seem to fly by, when the days are so long? 

MayLee wanted Chic-fil-A for her birthday lunch. 


Then that night we had a dinner of her choice.. Shrimp corn chowder and pink cup cakes.






She got some clothes and littlest pet shops. I wrapped up everything, just because it's so fun to have things to open.










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