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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Friday, February 9, 2018

Yule ball

These absolutly gorgeous girls are headed to the Yule ball at the library. All Harry Potter themed crafts, photos and dancing. They had fun having their palms read, trying some butter beer and and blushing any time a boy (gasp) got near them. I told Ry that if a boy actually was brave enough to ask her to dance then she would accept. Luckily she had no problems... 


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