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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, December 19, 2007

Better now

Dr. Su called a while ago and he said we shouldn't worry that we will be in the first week and he would take care of things and then Bonnie called me personally and said that he is going in on the 2nd and made sure I understood sometimes some schedule changes need to be made... I am relieved, and grateful for her call, and we now plan on having an amazing Christmas (with no unscheduled visits) We wish this for everyone.

I am way too high strung right now...

(Breath Brynn...)


Thanks everyone...

10 comments:

Christina said...

Brynn,

I am glad things got worked out. We definitely have to be our child's advocate to help them get the best care. Good for you and Jeff.

Your Christmas card came today and it is so super cute. I am so behind this year and haven't even taken my kids photo yet. Hopefully I will get out "Happy New Year" cards! :)

We continue to pray for Alex and your sweet family. Love you guys!

The Davis'

Jennifer said...

PHEW! I am so proud of you and Jeff for being pro-active... and look what your actions were able to do!!! His surgery is going to be two weeks earlier than they said...
Way to go friend!

Mindurs said...

Good news!!! I am glad they were able to get Alex in sooner!

Quinney Family said...

Brynn and Jeff,

You guys are great! We and the kids are always talking about the Homer's and a stop by the blog is a daily, sometimes more often routine.

Throughout our ordeal as well as seeing what so many other heart familes are going through, the only thing I can so sometimes is take a step back and realize who it is that is ultimately in control of things. The hardest thing for me is to have the faith to believe it with all my heart. There are so many prayers going out on your behalf, sometimes we don't always know the reasons for things. I know that He has a plan and a purpose for the Homers and little Alex though. Wouldn't it be nice if He would fill us in on some of the details? We hope you have a wonderful Christmas at Home and know we are thinking of you guys.

Eric Quinney
Dad to Bryson

Ashton's Family said...

You guys have been on a rollercoaster ride for a long time. I remember them telling us about Ashton and getting all psyched for the series of surgeries. None of it has gone the way we had prepared for in our minds. You are so strong and due for a little release. The unknown is sooooo…hard I think. Just give me a time frame to work within and then I can endure to the end:-) Wouldn’t it be nice if it worked that way, but then I guess we wouldn’t have to have so much faith. Hang in there! Alex is amazing. Last I saw him he looked good and I know he is being blessed.

Not a day goes by that we don’t think of your family. We still have to pull up that dance video with Ryleigh. She is so funny.

Enjoy the holidays,
Nathan

Kenny & Michele Kingsford Family said...

Brynn,

Good job - being the "squeaky wheel" worked! This is so frustrating for you! Sometimes I wonder why the doctors even give us a time line/plan for when things will be happening with these heart kids, since most of their cases are so unique. The waiting and wondering when surgery will be is the worst! We didn't think Taryn would still be waiting at her current age and size(based on what the doc's said), but here we are still wondering WHEN, while at the same time grateful for each day she's home. I think "heart moms" should get medicine too - something to help us not freak out every time "the plan" changes! :)

We will continue to keep your family and Alez in our prayers. Hope you have an amazing Christmas!

Michele

Mike and Rebecca said...

As I thought back many times over the past 3 years, I had many moments of breakdowns and frustrations because I could never see the end to all that Brinley had gone through and sometimes I have to admit I wanted to lose hope but I knew for Becky's sake I had to be the strong one. It was tough for me because those who have come to know me know that I am hardly ever serious and have a light since of humor about everything. Remember how you got to this point and embrace what you do know to be the true about things...

"We reach toward the unknown, but faith lights the way. If we will cultivate that faith, we shall never walk in darkness".

Gordon B. Hinckley


If you need anything, please know that we are all here for you!

Mike

carolyn q said...

You have a right to be frustrated. This little guy is part of you and you only want what is best for him. I am glad to read that they are taking your concerns seriously and I agree, GOOD WORK in being the advocate for Alex. Don't you just wish there was an exact book for this, so you could know what was the right thing at all times? Oh, the joys of being on the heart roller coaster.
It was great talking with you the other day too.
Heart Hugs,
Carolyn Quigley

jenica said...

although our situation isn't as live threatening, my neice is going in for surgery on the 7th... we may be neighbors! she has grade 5 bladder reflux. it's hard though, because if she gets sick again they have to put off the surgery. so we'll all be praying that alex and our anya won't get sick over the holidays!

yes dear, just breathe. the lord's in charge. and it's all going to be ok!

Melissa said...

Holy Crow! Sometimes freaking out is a good thing. Enjoy your holidays together. I'm glad things are resolved!
Melissa