Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, December 16, 2007

Loved this too!!!

I stole this from Curtis's blog.. It is a poem a heart mommy wrote... I loved it...

One day my world came crashing down,I'll never be the same.They told me that my child was sick.I thought, "am I to blame"?I don't think I can handle this.I am really not that strong.It seemed my heart was breaking.I have loved him for so long.I will not give up on this child.I will listen to your advice.I will give my child any chance.No matter what the price.I will learn all that I need to help my child thrive.I'll even use that feeding tube.My child must survive!Will he need a lot of therapy?Will he gain the needed weight?Please God, help me do this.I will accept our fate.When the monitors beep at night, it serves as my reminder.How many parents would love that sound.Tomorrow I will be kinder.As another Angel earns his wings,I run to my child's bed.I watch him sleep for quite a while.I bend down and kiss his head.I cry for the parents whose hearts have been broken.I look to You wondering why?Oh Lord, I just can't know your matter how I try.And yet, I trust you hold his life, and guide us through each day.My mind says savor each moment he's here,but my heart begs, "PLEASE let him stay"!From pacing the surgical waiting room, to sitting by his bed.From wishing for a good nights sleep, to learning every med.From wondering, "will he be alright?", to watching him reach out his hands.With every smile my heart just melts, despite life's harsh demands.For all who see that faded line.I look to them and smile.You see my child is loved so much.I would face ANY trial.That scar I trace with my finger (It's the door to his beautiful heart).God must have known how much I'd love him (Just as He loved him from the start).A heart mom is always a heart mom.Now wise beyond her years.For those who have angels in heaven,Our hearts share in all of your tears.Every day I will try and remember,I was chosen for him (and no other).I will always embrace that beautiful day.......When I became a "Heart Mother".


Mindurs said...


That is a beautiful piece; I am glad you decided to post it on your blog. My heart is with you during this trial.

The Curtis Family said...

Don't you love that poem? I could totally relate (as I am sure most "heart mommies" could). I am not sure where the original poem came from but I did revise it just a little bit for content and flow when I copied it to my blog. I am glad you posted it. (I think you get more traffic to your blog than mine.) Take Care!


Tricia said...

887 E 200 N
Springville, UT 84663

Uh, do you mind doing the same for us?

-The Sederbergs

Andrea said...

That was beautiful, thanks for sharing it. I hope all is well.

Crysm said...

Oh my..... I can't even begin to tell you what my heart felt as I read this. It's as if someone looked right into my soul and wrote exactly what I was feeling.
Thank you SO much for sharing!
~Crystal (Noah's Mommy)