Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Sunday, February 24, 2008

Remembering Ian

We have been thinking about our little friend Ian... His mom and dad and big sissy, are doing a special project to "give back".... I am posting a link to their blog so that you can find out how they will be honoring their little boy...I know that many of our family and friends have felt close to them because of their friendship with us and I wanted to share with you what they have been doing...Thanks...Brynn

1 comment:

Anonymous said...

Hey Super Lady:

I definitely want to work on this project. I never knew Ian or his cute family, but his story really touched me! If you are going to be working on it, Maybe we could work together? What do you think?