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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Saturday, March 1, 2008

I am messed up!!!!

We are all doing well and have been doing our regular things.....It seems like we have a new specialist or Rx to see or fill everyday.. I am doing hair now and seem to have most of my clients calling. They have been so kind to wait for me and get it done when we can... I am learning to juggle the kids and do hair at the same time. Alex is usually sleeping, Ry is hard because she wants to be right in the action. Those of you who have experienced her sitting on your lap while you get your hair done, know I feel horrible.... But thanks for your patients.... I feel like my social skills have gone completely in the toilet since we have been so focused on the hospital and staying well..I don't know how to talk to adults or to make simple things like visiting teaching go smoothly...So sorry if you've had to deal with me lately.... Anyway... I thought I would check in and say nothing has changed....

4 comments:

Anonymous said...

Hey Brynn:

I think you are fantastic. I am not just saying that either. I think you are remarkable in the way you have handled all of Alex's medical stuff, along with balancing Ryleigh's needs as well. You have two of the cutest little munchkins on the planet. Looking at their pictures you can tell they are so happy, and for that you must give yourself a pat on the back! I think you are great!

Anonymous said...

You are great!! Thank you for everything you have done for me!! You are so good about checking in on me. I really did need the time with you. You really don't need to feel messed up, YOU ARE GREAT!!! LYL

Anonymous said...

I love you Brynn, and think of you all the time. Hang in there, hugs and kisses! love Mindy

Anonymous said...

Brynnie,
You are a great mom AND a great visiting teacher! The End!