Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, November 23, 2008

The past couple of days...

This week has been busy. (What week isn't?) just for our record these are a few of the things that we have done... On Thurs. Reynolds asked if Ry could come and play... I walked over with her and Missy and I chatted on the front porch for a few minutes... Then Missy asked if Gator had had a blue sucker today.. I looked at his lips and thought..HOLY COW!!! We came home to check is sats on the pulse ox to find that he was 59. So I called card..I wasn't totally freaked. He's been lower. So while I was waiting for them to call back I put on his oxygen. Had him to three liters and he jumped right back up to his normal range-75-85. So he stayed on that the rest of the day.. It was a huge struggle to have him put his cannula's back in... He hated it. The home health supply lady (Casey) had this brilliant idea to put a cannula on his DI DI... once di di had it on, it was cool for Gator too. I forget how many looks we get when we are on O's. Especially since I let Ry carry the little B tank and follow Gator around... He also had a blow out that day and would not get into the bath to get cleaned off, he kept trying to crawl out and get that silly dog. I finally got smart and got a zip lock bag and put it in the tubby with him... He slept with the O's on and by morning and a good sucking out with the blue-bugger sucker thing, which I think is called a bulb syringe. He was back to himself. We were warned that little colds like this just might cause his sats to drop. I guess I am always surprised when it happens. Saturday was busy... We had super Saturday. I did the cutest things... I'll take a few pictures so you can do it too... I had a blast... It has been a great Sabbath day. We are taking it easy and I feel like I need to rest from last week and rejuvenate for what will be happening this week... BLACK FRIDAY!!!!

1 comment:

The Simmons Family said...

Why do our boys have to frighten us with their blue lips?? It's such a naughty trick. Don't you feel like a professional medic now though... get the O2, crank it up to I dunno...3 liters?... hook up the oximeter... We could totally be docs!

I love that I"m not the only crazy one that hits the swarms on BLACK FRIDAY!!! LOVE THE RUSH!!

Happy Turkey Day to you!!