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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, November 10, 2008

Wow and wow

Whew, we did it, we had our primary program, I feel like maybe I can function now.. I have been the chorister for about five weeks and we had our primary program all planned and all the songs learned (thanks to the previous leader) all I had to do, was learn all the songs and how to lead them since I have never lead before and then I needed to be an actress enough to get those kids to sing and smile and Whew!!!! I am really glad it's not for another year. Jeff and I had a real date to see the Body Worlds 3 exhibit on Friday. Thanks to Scott and Carolyn who graciously gave Jeff and me their tickets after mine totally disappeared. I looked high and low for those darn things... They are still gone... The body is an amazing thing, it almost wasn't real seeing things the way they have it available. This was also an amazing exhibit because it focuses so much on the heart. I am obsessed I know. But, I have learned so much in such a short amount of time... It is amazing to actually see your own brand-new baby's heart beating away in his chest. With every little beat, I knew he was getting better and better, with every beat I knew he was still here with me and that I got another minute with him. I must need something this big to be so interested because it is so amazing..
HE also started nursery... WHOOOOOOOHOOOOOOO!!!! it is nice, I worry about germs and getting sick, we will just be keeping an extra eye on him, but I love his leaders and all that they do to try and make it a germ free, safe place. It does help that there is more than one immuno-compromised child.. They take greater care with clean hands and really enforce the rules about sickies... LOVE YOU!!!!
Today I had a fun tutu party, for those of you who want to learn we are going to do it again, this time I will host it so it gives each home a turn for the Chaos... Thanks guys... I love Ry's and we are so doing the leg warmers in full force next time...
Jeff got the Christmas lights on the house on Sat... For those of you with LIGHTS envy/pressure have no fear, we just didn't have any other time to do it... so it would have been then or never.... Thanks baby, for doing that. Sorry, I kept pestering you... I love them.... I don't think I have any other news... so TTFN

6 comments:

Lyndee said...

did you make tu-tu's? That sounds like fun! I need to make one too I think! :)

Angie said...

How fun! I am glad to hear things are going well for you! I bet you make the perfect Primary Chorister!

Clifton and Melinda said...

You are the perfect chorister I am sure!! :) Congrats on being done with the program! What a relief! Let me know about the tutus...sounds like a ton of fun!! :)

Kara said...

Can you make an adult sized tutu? :) Even though I don't have girls I want to make one too...

Reynolds Family said...

I love your Christmas lights and wreath!

Lance and Raegan said...

Brynn, I've said it a million times and lets just make it a million and one: You are so AMAZING! I just love you and secretly I think I want to be just like you. You are so adorable and talented. THANKS, THANKS, THANKS for sharing your Tutu expertise. I think I was nothing short of a small disaster with the sewing but I want to try and hope to get better. You are the best!