Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Saturday, July 18, 2009

And this is it... for now!!!!

The 4th of July!!!
Nothing better than sitting with papa eating taffy, stomping on Poppers, having Debbie yell at the water gun squirting baseball players "Is that all you got?", having brothers hold you to be drenched by those water gun squirting baseball players, having rides in wagons, getting pictures with the pizza guy and just enjoying the whole DANG GANG!!!!!
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