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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Saturday, July 18, 2009

And this is it... for now!!!!


The 4th of July!!!
Nothing better than sitting with papa eating taffy, stomping on Poppers, having Debbie yell at the water gun squirting baseball players "Is that all you got?", having brothers hold you to be drenched by those water gun squirting baseball players, having rides in wagons, getting pictures with the pizza guy and just enjoying the whole DANG GANG!!!!!
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