Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, January 20, 2012

Lady Troubles

Not in detail or anything, just trying to document a little here. When this is published in our little family book I will have it for record.... My female organs are sort of a mystery, or were a mystery for a while. See.... I have trouble getting a baby and keeping a baby. Ry and Gator are Cholmid babies and Munchie was just plain us(nothing short of a miracle). I have had a couple pretty nasty miscarriages. Four; with one set of twins.  I am glad when I am back into mommy mode because my heart can heal a little too. ANYWAY! I was having some issues about two weeks ago that landed me in the ER and not-to-my-surprise I had a cyst. I have had these before so nothing to worry about. But finally, I have a little diagnosis of why my body has never wanted to shed pounds that I try to diet and exercise off. Why I do struggle with the whole get the babe, keep the babe... PCOS! Something to hang my hat on and start researching to make my life easier. I go back in six weeks for another ultrasound to check the cyst and the little nodule that resides inside of that! Walllahhh! Wanna know something crazy? I totally bought a book from the library book sale on PCOS! Let the research begin!

Man, I feel more like myself now; then I did when I first got here!

And then...........

We got the letter back from Cardiology for Gator and school. It is always interesting to me to see things like procedures and surgeries listed like it was in this letter. The list seems so long on paper. Yet to see Gator boy, all totally worth it!  That day we also filled out the pre-screen to have Gator tested. We have a date to see the teachers! I was so fascinated by what I learned about my little son. He is very great at communication. He has an amazing vocabulary. He even has decent motor skills... But his ability to sit still, even for short amounts of time and to use fine motor skills, like holding a pencil, buttoning and zipping are still out of the question. He can follow a few instructions. He can't remember things well. He doesn't know any of his letters or numbers except "A" and he can't even tell you the letters in his name... We have been working on these things for two years! I feel like it takes ten times to teach him something new!  It is going to be work.... But we are going to do it! I was feeling very nervous about having him tested. Now I feel very blessed, because I know that I don't have the skills necessary in helping him be confident in school. I am grateful that there are teachers who will help him be a good student. Not the best student.... I do not require this of any of our children, but a student who works hard and does not act entitled. I was not the perfect student and so I cannot push that onto my children.  What will be hard is teaching them/him to work beyond the frustration both of us will be feeling. To keep trying even when it is hard. I still have to learn that.

 I don't need easy
I just need possible
-Soul Surfer


The Simmons Family said...

I have PCOS too...only I don't get pregnant so I haven't had a miscarriage. That is why i have 8 years between my two all natural babes. If you have any questions, let me know. I have been on metformin for years to regulate my periods and the only way to shed the pounds is by ditching sugar and carbs. The weight disappears! It's just a hard diet to maintain.

Melanie said...

So you totally need to email me and let me know what you did to get Gator tested for school and how you went about getting the letter from the Cards. And Peyton is just like Gator...doesn't know his letters...not even in his name. And he doesn't like to sit for long periods of time either. So, email me at and let me know what you did cause I gotta get working on it :) Thanks!

The Snell Family said...

My sis has the same thing, she has weird periods but can get pregnant and keep babies. She just recently had a cyst rupture and another that has to be removed, doc also had to take and ovarie, turns out all the egg in there were non-viable and she had stopped ovulating from that side. She is now loosing a bit of weight. Good luck!

Sally said...

I hope you don't mind I found your blog on facebook! You are welcome to blogstock me. I have PCOS too! We really are meant to be friends. Figuring it out gave me lots of answers and finally a baby! Go on metformin. It's amazing!

Cynthia said...

I am sorry for the hospital stay. I have PCOS too though not hardcore- I have regular cycles. Our infertility problems were a double whammy (and oh how I love to say 'were' as in 'past tense'- so glad that phase of life is behind us now).

No, now it's a weight loss thing and how dang hard it is with PCOS! I'm not on Metformin now though I took it in the past through our IVF & IUI cycles, but I am reconsidering- it seemed to make it easier to lose weight with diet and exercise.

I'm sorry for your troubles but glad you've gotten confirmation on the diagnosis. Dang PCOS!