Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, August 13, 2014

Dancing in the rain

Singing in the rain, just signing in the rain!!! 

If all the rain drops were lemon drops and gumdrops.. Oh what a rain that would be. Standing out side with my mouth open wide.....
Yeah not going to open her mouth at all. 
He wanted in on the fun.

She did too.. 

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