Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, August 13, 2014

Honey bear

Alex's Grandma Homer works at Beehive Homes in West Jordan. We love to visit all the grandma's and Grandpa's who live there. They are always so sweet to our family and feels like we have a whole bunch of extended family. They are aware of Alex needing a healthy heart and wanted to do something for him and his friends at the hospital... So each grandma or grandpa stuffed a Honey bear (get how cute that is? Cause they are Beehive Homes??? Get it?? Get it??) added a heart inside and hugged it to pass on a little extra love. Alex and Eden were so excited to see all those bears. Each special bear needed a little fun too, so the kids played with them, hugged them, and whispered a secret to pass on to its new family. 

This bear was stuffed for Alex and hugged by grandma Jones. She said it had a wrinkly face like her so she wanted Alex to have it. Ahhhh it is so cute. 
Then last week we took half of the bears to transplant clinic with us. We gave them to Jaimee to be in charge of. I wanted all the newly prediagnosed families to have a bear for their new heart babies. It is horrific news to hear about your unborn baby. It is hard and scary and I want them to know that a 7 year old boy has meant the world to this family... But not only that, he has meant the world to his extended family and his friends and people he doesn't even know. That when the choice is given to them to terminate... I can say... I would do all the hard things a million times over to enjoy this sweet boy even one minute. 
We kept the other half of the bears because we want to take them with us to visit our new heart baby families. We have talked with a couple of newly prediagnosed families. My heart aches for them. When their little people make their grand entrance into this world I want to visit with a hug and now a bear. 

We are so grateful to Beehive Homes... Victor and Valerie both Rock!!! We love the honey bears... #beehivehoneybears

1 comment:

michellemamajamma said...

I heart all of you! What comfort you must bring to those families atsuch a difficult time. You are amazing!! Love you and all your hearts!!