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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, October 8, 2015

A little of this

My Eden turned five. She is completely into having fun with friends, going to preschool, and is a great helper at home. She plays well with May (almost all the time, unless they both want the exact same thing) she just finished up her first season of soccer, she scored two goals at her very last game. She is doing a fantastic job at dance class. She taps and tumbles and does ballet. She can unload the dishwasher in about five minutes and scrub a potty like nobody's bad business. She is doing great at writing her name and can read every stop sign we see. Plus also, she informed me that my name starts with a B. I just love her so much. 
She has a couple of friends who celebrate birthdays right around hers. This year was a family year so we didn't do a party with everyone, and no gifts.. We just got the girls all dressed up in their princess dresses for a Princess punch party! They made sandwiches and cut them out with cookie cutters.. 
We painted nails and did makeup.. And they decorated cupcakes.. They all had so much fun. 



That evening we ate at Pizza Pie Cafe as Eden's choice and then went to Build a bear (you must sell your right arm to pay for it) did you know you can buy a closet for your pet? It's true.. 
She was so thrilled. She named her, Glitter. They share a birthday:) 

Alex did a story with Hope Woodside about organ donation. We hope others will be inspired to become organ donors. How hard it must be to think of organ donor while you are in the midst of grief. We are thankful everyday for our donor family. 
We are in the middle of red ribbon week. For Hero day Ry wanted to dress up like me.. I sure love that girl.. I told her to throw on some yoga pants and sling her shirt with baby barf.. 
Gator had about twenty people to dress up as, daddy being one of his, but settled on Doctor Su/Lal his cardiologists.. 
I think it's super funny when the babies can finally sit in this chair.. May calls this Asher's hippopotamonkey chair. 











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