Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, October 21, 2015

Today's plan of action and rest

Gator had a good night, he is having a little bit of blood pressure issues. Those are related to the pain he is feeling. He is trying to be stoic and not push his green button. We are trying to gently remind him that staying on top of the pain will help him heal faster. 
Our plan today is to let his tummy rest from food.. To let him sleep as much as possible.. And to make it a very quiet day. 
He was able to have his folly cath removed and worried all morning that he was without  "drawers". He told everyone at least a couple of times he wasn't wearing any. I brought up a bunch and pj pants, so he is back in business.. 
Our sweet friends the Dixons and the Kiesewetter's for your thoughtfulness.. It sure makes things better to have you in our lives. 


Michele said...

I will continue to keep Alex and your family in my prayers. I'm so happy to hear that he is going to recover!! Thanks for the update!

cfarr said...

So sorry to hear about all Alex is going through. You will all be in my thoughts and prayers! ❤️