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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Friday, October 23, 2015

This made me feel better

To see this little smile did more for me than can be imagined.. My heart soared to hear his voice and tell me he is sleepy but not in pain today..
They also took off his dressing..
Yup!!! that's why this stinks so much.. 
He has so many stitches "too many to count, hundreds" as doctor Meyer said. It has to be painful. 
The big theory for the set back was how much fluid he was retaining and not able to peep off.. Now to getting him diureased... And feeling better. 


5 comments:

Angie said...

Big hugs Alex! Your friends at school can't wait to see you again!

Angie said...

Big hugs Alex! Your friends at school can't wait to see you again!

likeschocolate said...

Glad he is feeling better!

Anonymous said...

Oh sweet gator! Prayers for all of you. Hope you're doing well.

sarahgurl said...

Holy stitches!!! Is he up to having visitors? Need help with Asher??