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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, March 23, 2016

Bike ride to the park

I figured out how to attach the trailer to my bike. We set out for the mile ride to the blue park. I ran into a couple of problems #1 Eden does four pedal rotations to my one and she tiers easily. #2 Alex is much stronger now and wants to go fast and leave us = not safe #3 MayLee and Asher get a little squished together in the trailer.. I need to put a pillow between them. #4 we need a little more practice on roads near cars.
But we made it and loved playing at the park. 






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