Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, March 21, 2016

Little trip to Idaho

It's always a treat to visit grandparents/great grandparents. We are such a big family now that we stay in a hotel. The kids totally love it because of the pool. 

We totally improvised a chair for Ashy. Borrowed papas belt, to belt him to the chair and a towel for a makeshift bib. 

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