Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Monday, March 21, 2016

Little trip to Idaho

It's always a treat to visit grandparents/great grandparents. We are such a big family now that we stay in a hotel. The kids totally love it because of the pool. 

We totally improvised a chair for Ashy. Borrowed papas belt, to belt him to the chair and a towel for a makeshift bib. 

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