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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, August 23, 2016

Some days we just go with it.

I just love our little piece of heaven. It's about as crazy over here, as the next guy. Maybe, just maybe, dare I say a bit more crazy.
Take for example: Gator 
He recently fit himself into his baby brothers shorts. Quite the event for a nine  year old boy to fit into 24 month size shorts. 
But here is the proof it's not impossible. 
His tiny bum fits in small clothes anyway. He, wearing 5t pants as his usual. So maybe I shouldn't be surprised by this. 
Back view

Or getting out so we aren't stir-crazy. A Sunday walk/scoot. Gator was the only smart one with a helmet. I need to get after the girls to remember theirs too.
And some crazy fun..



More crazy fun, this time at the Lehi fun center with some of our crazy sweet friends.. 









Then we ran around like craziness at the IHH heart walk/Potter run. I took a whole two photos because I was so busy trying to help at then license plate table. But we had a great time. 

Good thing for friends who take photos..
I just love these heart boys. They all have heart defects and have grown up together, fighting.. 
Here is a little crazy clean.. 

Last is the BIG crazy... 
Which I am:) 






















1 comment:

Cindy said...

Wow you guys have been busy! Looks like a lot of fun!