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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, August 2, 2017

June 10th

Lagoon passes this year have been sooooooo much fun. We even got to hit the park with Grandma, Papa Clawson, Arlington, Wells, and Auntie Pres 










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