Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, August 2, 2017

Philmont part 1

The Stake presidency and High councilman Brother Bates, all got invited to attend Philmont Scout Ranch for LDS week. This is us about ready to embark on our 11.5 car ride to Cimmaron, New Mexico.
We drove half way and got all our wiggles out in the hotel pool.
Road trip!!!

There were some extreme sized bugs. The first thing we noticed

These were our luxurious outdoor condos.

Pioneer/ cowboy party did not disappoint. We loved the ice cream part.

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