Cardiac Cath day!!!

Most things for Alex's heart transplant evaluation have been scheduled and moved on... Some times I feel at neck break speed... Whip lash anyone? On some days we/I hide at home for an ugly grief session until I can put on my big girls and face the challenge. (Or muddle through) I get so frustrated that things are out of my control. I suppose that is what this trial is meant to teach me. Giving up the control to the universe.. To Heavenly Father... To those who will help. In the end I realize that once I do forgo that control issue; healing, fighting, and peace will soon follow. 

So today wasn't as scary and worrisome as it could be. We dropped off the girls so very early.. We know we are loved when we show up at our helpers houses at 5 A.M. In jammies to. We also got 5-6 inches of fluffy white stuff. The good kind that makes great snow men. It pushed all the gunk out of the air so Gator was itching to play in it. The roads were great beyond the neighborhood. Gator was happy all morning and compliant as usual. Just a little on the hungry/thirsty side. I could only say " Me too!" Other than that, he is great at not stressing out. He was excited planning Ramen noodles for lunch.. He also chose watermelon 'sleepy air'. We left him a little while ago. 

The gist of this procedure is; pre-listing doctors like to have a clear idea of what pressures are like in your heart. Also, they like to coil off collateral veins. 

To explain collaterals, think of a house.. It has a main water line... If you turn on one water faucet at a time you get great pressure. Having collaterals is like having all faucets, the shower, dishwasher, and washing maching going all at the same time... The pressure isn't that great and therefore makes a trickle... So, they take these tiny wires and essentially shut off the faucets or extra veins that his body has created. It is hoped that it will improve his blood flow. Okay that was a really rough explaination. Hopefully it made sense. 

The help

Even smashing potatoes for dinner is tough work sometimes. 

If you don't sleep well at night, you might be sleepy during a shower... After a shower and while mom does her hair. 

The things today.

I very much love this Mormon Message! 

          Come What May, and Love It

Today we went up to the hospital for labs, another PRA, and clinic. Gator did fantastic. He didn't even cry when he had his poke. Probably because Chels did it for him again. She is fast and explains things to him and it doesn't even hurt. He is becoming very brave with needles. Clinic was a measurement of weight, height, and listening. He sounds like a washing machine instead of a drum. He is also a little guy and is not much bigger than his little sister who is three years younger than him. Just to give you an idea of his bitty-ness. They both wear 4T pants. Gator will be 7 in April. I guess it would be okay if he had a short daddy, but his dad is 6'4". He is genetically supposed to be a little taller, I think. His case will be presented tomorrow in a meeting. Transplant will discuss their findings, along with Doctor Su. I am sad to not have our visits with Doc Su anymore. Once we are with transplant we have a new Doctor. Lucky for us we really really like Doc Everitt, she makes leaving Dr. Su better. I think he will still peak in on us every now and then. We are pretty attached to our Docs and I think that feeling is mutual. Then the kids and I ran around trying to figure out insurance stuff. After that we rushed home to get to Eden's dance class. 

While Eden was at dance, I took Gator to school. After dance we went to find some rubber mats for our new van!!! Eeeep! Squeeel !! It is absolutely the coolest car I have ever driven. New to us and so awesome. If mini vans are not your dream car, that's okay.. I happen to love them. A lot less miles, a lot younger then Gertie the blue, and totally decked out! 

We grabbed the kids from school after that and finally came home to do homework, start dinner and pick up a little. It was a long productive day. 

 

May

Why yes dear, that would be located in the children's section of the library. 

Hahahahaha !

A Sunday afternoon

Somebody figured she was sick of her O's for a minute and pulled it right off! I am always surprised how different she looks without it and grab the camera to document. She is darling with it too. She really really wanted my phone right this moment hence the grouchy face. 

While I fussed in the kitchen these two buddies played. Not always nicely I might add. They are learning how to use kind words and that a person is way more important than a game on a tablet. It ended up getting shut off and they got to choose something different. 

This is what she was doing. I can't believe a 9 year old can make such a darling hair style but she did! All by herself on her own head. That takes talent!

Mays first Birthday cake smash in Chrome Filter

I had this amazing cake smash planned for MayLee. I had researched on Pinterest just how I wanted it to be. Then May got sick and she just wasn't up to it all. We did it anyway. She also isn't using her oxygen so I filtered everything in Chrome. I am pleased to have this memory. She had a good time destroying her pink cake! 

Moving along

Daddy and I had our enormous transplant evaluation day yesterday. We visited with a team member from each part of our big team. Overwhelming as it was we are moving forward. Gator man still has a few tests we need to do in order to officially list him. Then it's the waiting game. Thank you all for the continued prayers,strength and love. I would really love to comfort eat through this (cookies, cakes, pretty much every lovely thing is out!).. I would need to be rolled around after... Instead i have found other ways to get my mind off of things. 

MayLee had a well check today. She is doing beautifully. She also got shots today! 

I made some masks from an online tutorial! They turned out pretty cute! 

I think my next project will be some tank cozys. May's O's tank could be totally dolled up!