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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, January 20, 2014

A Sunday afternoon

Somebody figured she was sick of her O's for a minute and pulled it right off! I am always surprised how different she looks without it and grab the camera to document. She is darling with it too. She really really wanted my phone right this moment hence the grouchy face. 

While I fussed in the kitchen these two buddies played. Not always nicely I might add. They are learning how to use kind words and that a person is way more important than a game on a tablet. It ended up getting shut off and they got to choose something different. 

This is what she was doing. I can't believe a 9 year old can make such a darling hair style but she did! All by herself on her own head. That takes talent!



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