Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, April 24, 2007

Everybody Loves Me

Alex has been so blessed to have so many visitors from those that just love him. We are so greatful for the support everyone has been to us. Alex is doing wonderful. We found out that his surgery will be tommorow @ 8:00 am. We have tried to spend as much time with him as possible. I can't think of anything greater than sitting with him and holding him. We also have really loved having Ryleigh coming to visit her little brother. She had an opportunity yesterday to get a hospital doll that she could color a face on, put bandaids on, put medicine into an IV in the dolls arm, and dress it in a hospital gown. We are so thankful for the programs and people here at the hospital that are so wonderful with Alex but as equally wonderful with the rest of the family. The last 2 nights Brynn and I have gone home to sleep, it has been so wierd to have 2 children now and not have either one at home with us. Thank you so much Grandma & Grandpa's for helping with Ryleigh! We are here all day to be with our little one, after surgery we will not be able to hold him for a few weeks, so we are trying to get our fix now. So we will wait until tomorrow to update this and hope and pray for a successful surgery.


val said...

What a doll! He totally looks like his daddy. So cute. We love to be able to keep updated on your blog. Thanks for including us.

Jennifer said...

I love the new pictures! He is so dang cure, I just want to eat him up for breakfast, lunch AND dinner! Let us know when we can see you again, talk to you again, and help out in any way possible. We love you guys and will pray extra hard for all of you tonight and tomorrow.

the roberts said...

gorgeous gorgeous gorgeous!!

you are amazing!

Anonymous said...

He is so so so sooo cute. I love the little life flight t-shirt!Congratulations! I am so glad that everything went well and hope and pray everything will tommorrow. I wish I could be there to help in whatever way, but I love you guys and will be thinking and praying for you and little Alex. What a precious little guy he is. Love you, Nicole

Angie said...

Wow Brynn and Jeff!
What a handsome little boy! I am so glad things are going well thus far! He is absolutely beautiful! We will be praying for you guys tonight and tomorrow!

berrymom said...

Brynn and Jeff-

My mom gave the the link to your site. I am so glad to be able to read abvout how things are going. We will pray for you as hard as we can. You all look so beautiful! We love you!

Love, Jen, Jackson, Thomas, and Nicholas Berry

Amber Pond said...

HE is soooo cute!
Our thoughts and prayers are with you!
Along with the wole ward!
Primary Childrens hospital is an amazing place! I am glad that is where you guys are!
Amber Pond

Terry said...

What a great day I heard you guys had. I talked to Diane last night. I think he is so cute! And it looks like Ryleigh like him to. Our prayers are with you and Lyonel wanted you to know that they are praying for you in the DR. also. Love you guys! Call for anything!
The Gammon's

Anonymous said...

We love him, he's as cute as his little sister! Justin says, "he has Jeff's cute little nose." While I can't fast in the traditional way for you tomorrow, I will be doing it in my own way. You're in our prayers and our thoughts. Let us know if there's anything we can do.
Love, the Rebers

Anonymous said...

Oh, he is so adorable! I am so happy you have been able to hold him! You are in my prayers always:) You guys are truly amazing! Please let us know if I can help in anyway! I LOVE YOU ALL!

Anonymous said...

You are in our prayers and he is so cute. He is so blessed to have such a loving family. Our love The Farnworths

Anonymous said...

We're praying for your family. PCMC is wonderful.