Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, April 25, 2007

Post from the mommy

What a huge day it has been for our whole family. It feels a little like being dragged behind a horse. Grandma and Papa Clawson took Ryleigh to the Zoo and she had a blast looking at all the animals. Jeff and I spent most of the day in the waiting room. Now we are just watching over our little boy. The hardest part for me is feeling torn between our two beautiful children. At least I know she is in good hands with the grandma's and grandpa's. Alex is very different looking after surgery. He is swollen and now has so many things hooked up to him, but he is stable and doing good. Dr. Hawkins had to come up and cut into his tape and suction some blood that had pooled. It wasn't continually bleeding it just wasn't draining. Everything else seems to be going good this hour. It changes hourly and some things are very hard to understand so I won't go into too many details. You can see right into his open chest at his heart pumping away. He is amazing. I feel very close to heaven right now. This is an amazing journey, we are so blessed to be able to see and feel all of these things. You should be envious of us.....


Anonymous said...

I'm glad things are looking good. You will continue to be in my thoughts and prayers.


Anonymous said...

Wow! Brynn we just got back from a week long vacation and not a day went by that I didn't think of you and your family! I had read the blog before we left and knew that little Alex wold be born while we were gone, boy did I wish I could have access to the internet while away from home! The first thing I did when we got in the house was check out the blog! Without getting all mushy on you I just wanted to say what a true blessing you and Jeff have been given, your little guy is absolutely gorgous. And I too have to agree he looks just like little Ryleigh! Wow! I want you to know that you and your family are in my prayers and I pray that things will continue to go as well as they have. Alex is truly in the best hands! I know you have a lot of family and friends helping right now, but please know that I am here as well if you need anything!

Cara Sessions

Anonymous said...

We are happy that all seems to be well at the time. He is so sweet and why not he comes by it the way of his parents. You are in our thoughts and prayers always. With our love and respect The Farnworths

Anonymous said...

Brynn and Jeff, your outlook and feelings are so positive, your spirits just shine throughout your posts. Thank you for blessing the rest of us with your sweet spirits, and taking the time to keep us updated. We love you! The Rebers

Rob and Kathy said...

Brynn, you are amazing. You are so right about being close to heaven. You are right there amoung the angels who are attending to Alex. He is a very valiant little spirit to endure this challenge and Heavenly Father is so aware of Alex and your family. It is a little shocking how much they change after surgery. There little bodies are just miraculous and to watch them work and heal is a precious experience. Thanks for sharing this with us and I for one do envy you both right now.

Angie said...

I am so blessed to know you! You are so strong and such a good example to me. You find the positive in everything! I am praying for you constantly! Thank you for keeping the blog updated! I am addicted to your blogsite!

Anonymous said...

You guys have such a sweet little family. I cannot believe how much Alex looks like Jeff. What a cutie!! I am so glad the surgery went well. We will keep you in our prayers.
Love ya,

Jennifer said...

Thanks for the best "group date night" ever. We sure do love all of you. Now get some rest!

ERICKA said...

Brynn and Jeff! We are so happy that you are doing well.
We miss Ryleigh coming to the back door the past few days!
My mom is watering your plants!
Get some rest! All will be fine!
We Love you guys and we are so thankful to live next door!
The Hansens

Anonymous said...

Brynn, Jeff, Ryleigh and Alex we are proud of you! We know that it is such a bitter sweet feeling to be in your shoes. You are in our thoughts and prayers. Love the Browns