Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, April 30, 2007

Mom Rocks

I have noticed a trend, and that is that Brynn's Posts are significantly longer than mine. She is truly the one that is amazing, and I just coast along in her footsteps. I had to go back to work today, so Brynn stayed at the hospital last night, and I came home. What a feeling to be alone in our home, with Ryleigh in Orem, Brynn and Alex at the hospital, I really missed them all. So to let you know of Alex he did well through his surgery yesterday, he only had to be on the bypass machine for 34 minutes, and seemed to come off it well. We saw him about an hour later, and noticed an immediate difference, his hands and feet were not at all blue any more but were now pink and warm, and the coloring in his whole body seemed to be better. His saturation levels are a lot better, and it seems for now to be a success!!!!!!!!!!!!!!!!!!!!!!!! We know at any time things can change, but are so grateful that all went well through this procedure. We have felt so close to him and closer as a family through this whole event, and I really noticed today at work away from my family that I long to spend time with them. So in keeping with tradition I will finish, don't want ruin my reputation of being short with words. One more thing we love the comments, but have no idea who (J.) is, would you please reveal yourself!!!!!!!!!!!Thanks Jeff


Mike and Rebecca said...

Jeff, It was great to finally get to meet you and your wife at the hospital. My family will continue to keep praying for Alex's recovery and wish you guys the best. Kids like Alex have amazing spirits and are strong fighters.

Anonymous said...

Jeff & Brynn,
My name is Joni. I'm Angie's sister-in-law (I'm married to Justin's brother Todd). Angie sent me a link to her page when she began blogging and was linked to your page from hers. Your posts have really touched my heart and I pray for you and your family every day. Although I don't think we've ever met in person I can feel how much you love your children and your family through your posts. You are inspiring and quite simply amazing examples.

Sent with Hugs, Happiness and Hope~
Joni (

Anonymous said...

So happy to hear that so far everything is going well! We love your family and are praying for all. Thanks for the updates, believe it or not you are on our minds constantly. Love the Brown's

Anonymous said...

I hope things continue to go well. I pray for you often and think about you a lot. Good luck.
Natalie Clark Fisher

Terry said...

Jeff, I am very proud of you keeping up with this blog! You are so much better than I am. Thank you for letting us share this time with you guys! You really do mean the world to us!
Love Ya! Terry

the roberts said...

Thanks so much for keeping up the blog. we check it several times a day to hear the latest. It is so nice to not have to be intrusive but get the scoop.

Thinking of you all the time! Yeah for pink fingers.

Jennifer said...

Obviously, moms do rock- Brynn especially! But don't forget that dads rock and children rock and even neighbors rock sometimes!:-)