Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, June 5, 2007

Milk mustache

Do you hear the trumpets announcing????Alex passed his swallow study today. It was darling to see him strapped into an upright chair and acutally watch the fluids go down. He had a white mustache after the study.... He is also doing well on good ol' enfimil.... These are huge steps to him getting better. He is tolorating his feed of formula and I actually placed his ng tube today. It was really scary but I managed to do it without totally ticking him off, It will also interest you to know that you can use KY gelly for a plethera of things....Like placing the NG. We are making leaps and bounds this go around and the dr.'s are impressed. I finally feel like we have a little happy baby instead of a sick little boy. We aren't quite sure of the time frame for home yet... But soon... Brynn


Quinney Family said...

I thought I heard something today, it must have been the trumpets for sure. We are excited, the benchmarks that we take for granted in our healthy heart kids become so important for these special heart kids. Way to go Alex!! Also to hear that he is tolerating regular Enfamil is awesome, the other sound I heard was probably from your pocketbook shouting for joy that he may not need the $28 a can Pregestimil. Maybe Alex can call Bryson and tell him that the regualr stuff is just fine :-) We check in every day and look forward to seeing you guys go home soon!!

Eric Quinney

Terry said...

Sounds like things are coming along. You GO ALEX!!! I have be thinking about you so much! Hoping all is going well, let us know what we can do to help! Love You guys!!

Mike and Rebecca said...

GREAT NEWS...Sounds like things are looking up,hopefully without a hitch you'll be home soooooooooon!!!!!


Anonymous said...

What great news! Go Alex go!!

Prayers and hugs,

Jennifer said...

I swear that I left this message yesterday, but obviously it did not go through... YEAH BABY ALEX!

Anonymous said...

It sounds like your little man is doing wonderful. You are always in our prayers. Our stake president told our youth "You can not change the winds but you can adjust your sails" You guys have mastered the art of adjustment. All our best and may you have your little man home soon. The Farnworths

Clifton and Melinda said...

Yeah Alex!!!! We are always excited to hear great news!! You are always in our thoughts & prayers!! Let us know if Ryleigh ever wants to play with Ryker again!!