Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Friday, June 8, 2007

second round

Alex came home yesterday. Needless to say Jeff and I didn't get much sleep. We are glad he is doing well. He also went to his pediatrician today and she said he looks great. These posts might be a little short considering how little time we have to do this but... at least you know how things are progressing.


Anonymous said...

Hey you two who needs sleep anyway!! :) This is just fantastic news all the way around. I got to see new pictures of Alex with Grandma and Grandpa Homer. He is lookin' good! Let me know when Alex is doing well enough in the next few weeks so that we can come and visit. Love you all!

Anonymous said...

Yeah! Glad you're back home together!! :)
Hugs & Prayers,

Anonymous said...

Yeah, were glad your home but also know how hard that can be as well. The schedule sure gets stressed with feeds and meds. Bryson started sleeping through the night right before he went back in for his second surgery and now that were home again I guess he feels like he needs to be back up a couple of times a night. I think it has something do to with the around the clock attention the nurses spoiled him with. We are thinking about you guys! Welcome Home!!!

Anonymous said...

Great news, we're glad your home!!!!!

The Pattons

Anonymous said...

YEAH! We were hoping to hear some good new adn this is it. We are so glad that Alex is tolerating his bottle, doing well and especially that he is home!He is a real trooper! lv u much!

Anonymous said...

Hi guys,

I’m a little slow on the uptake, but I’m so glad you got to go home. I thought I would get by to visit up there on the 3rd floor, but by the time I felt comfortable leaving Ashton for a bit you were gone. I missed you by about an hour I was told. I was walking by the board in the hallway and saw that “your” room was empty. I hope all is going well still and I hope we don’t run into each other again in the PICU. We made it home on the 9th and Ashton is doing great. He is off oxygen finally and the NG tube is out. I know what you mean when you say that it is hard to sleep when you go home. As hard as it is when you are in the hospital, at least you know that the resources are readily at hand and you have someone to help take care of your baby, who knows how to care for him. I love that little redhead Jess, she is so good with Ashton.

I pray that Alex continues to get stronger. Don’t forget to get the rest you need also. You can’t take care of him if you don’t take care of you sometimes also.

Nathan Hardman