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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, July 6, 2007

Happy 4th


We had a blast at the parade and Ry loved seeing the floats with the princess and the horses. It was neat the she was able to really enjoy it all this year. Alex went to his first parade and his first movie. We saw Ratatouille, it was darling. We hope everyone else had a fun fourth.

Alex is still doing well. We went to see his pediatrician on Friday and she was amazed by the weight he is putting on. He is looking really great and we are praying it continues.

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