Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, July 23, 2007


I just wanted to write that all is well. There really isn't much going on right now. Our major goal is to get Alex strong and big before the next repair. So I guess if anything comes up (which we hope doesn't happen) I will write. We did go to Orem and stay with my folks last weekend. A real slumber party for Alex and his first, someplace other than the hospital. We love them......

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