Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, July 3, 2007

Getting chunky

We went up to the hospital today to fill Alex's study drug and he was weighed. He is just putting on the chub. He is now 10 lbs and 4 oz. It is amazing he is growing so fast but he does love to eat. We saw a few friends there. They were there for far greater trials and I have yet to find out what the outcome of their tests are. Bryson was there and a new little friend of Ry's and the daughter of one of Jeffs coworkers, Haylie. They both need the extra prayers so send some their way. We are so grateful for all the support we get, and we know that we can't do without it. We also spoke with the family of a pre-diagnosed HLHS girl. They will deliver in Sept and are just going through the beginning part of the emotions of this roller coaster. Our prayers are with them.


Mike and Rebecca said...

Brynn, I'm glad to hear that Alex is gaining weight and doing well,adding the pounds will help him through his next surgery and make him stronger. Its also nice to hear that your paying it forward by helping out other families with the same fears and concerns as we had when we were at the hospital. Have you given them the yahoo chat group? I would love to meet and help support them as well. We will continue to pray and fast for all CHD babies! I hope I can put together a date for the picnic that you and your family can attend. We'll have to also find some time to get the girls together.

alisha said...

What a wonderful blessing it is to have growing babies. We will keep you all in our prayers(especially Nick and his family). I am so grateful that there are others who may share in your strength and optimism. You all have so much to give!

Love you, Alisha

Anonymous said...

Hi Brynn,
This is Allison (Ethan's Mom). I am so glad to hear that Alex is doing so well. Ethan is doing well. I would love to get in contact with you and get the websites for support groups and to also keep in touch for upcoming surgeries/procedures. Keep up the good work. Allison

Erik said...

hey it is erin! i have been following little alex's progress and this is so great! He is such an angel and I cant believe ry! she is so big. Well my little one was born on the eleventh of may and I would love to get together for a little play date with chloe and ryleigh (i hope i spelled it right). I miss you guys and I home to hear from you soon. Good luck with everything and let me know if you need anything at all!!! love ya. erin greer

Heart Mommy said...

I am so happy to hear from everyone. I am so glad Ethen is doing well you guys can email me at and I will invite you to the yahoo group. We are even planning a picnic for all the heart babies.... It will be a blast. I will give you more info as I become aware.... Love Brynn