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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, July 8, 2007

A quick one

So we came back to the hospital yesterday. Alex was doing good ......just not as good as he normally does. He is was not eating or sleeping well. His coloring looked bad and he was over all more cantankerous. So I made all the phone calls just to hear them say bring him in. He had elevated potassium or what is called hyperkalemia. This is a condition where the levels of potassium in your blood is higher than normal. Potassium is an electrolyte that is normally found in your body and keeps your body working properly. Potassium helps control how your muscles, heart, and digestive system work by moving into and out of cells. Most potassium in the body is found inside the cells. Hyperkalemia happens when too much potassium is outside of the cell and stays in the blood. The plan is; to keep him and watch him until his levels look good and he is eating better. We are fine. I didn't fall apart this time and we feel at home. Maybe because it is not that serious or maybe because we most likely will go home tomorrow. Haylee went home today. They found out that she had a cancerous tumor in her kidney. It's so scary to have a sick child. It was removed and she seems to be healing well. We feel for them and we just keep praying for our little friends. Our Bryson friend is a total miracle and nothing seems to be too far out of the ordinary. So we'll keep plugging along until the Glen ( repair # 2).

2 comments:

sstar said...

Glad he's doing okay. It's nice that you know what to look for! And how nice to have a set-up system to call and step right into. I love modern medicine more as a mom than I ever did before.

And ps, thanks for explaining everything as you go along, this is all new for me so I love that you spell it out. Thanks for letting me be one of the many involved in your miracle. :)

Anonymous said...

i know I've said it before, but I am going to say it again. You guys are amazing. You take it all in stride. Alex and Ry are so lucky to have you two!!! We'll keep you guys in our prayers. We love you!!

Love, JJ