Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Sunday, September 13, 2009

Always late but worth the wait!

I am late on this news... But, I did want to share the amazing news of a Hero I am following. His name is Paul Cardall. He has the best news of a new lease on life and a new heart. I wish his family the best and I also hope that the family who made the decision to offer this gift, feels comfort at the loss of their loved one.

In other news... I am sooooo glad last week is OVER...... It was busy...

Ry's birthday/school
primary trek
super Saturday
Heart Walk

all checked off my list...

Now on to :
Ry's first day of dance
cleaning up the disaster I call home
Ry's School
ear tube post op check up
finishing the move from our old ward house back to our old old ward house...

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