Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, September 10, 2009


Gator and Ry got to sit in a real-live fire truck. Gator was so over come, he just kept watching everyone else. We spent the morning trying on gear and checking out the jaws of life and sitting in the "driber"(driver) seat and sliding down the fire man pole. That by the time we got a few blocks away after we were all done, Gator started to cry and want to "see Paul, a fire truck, i dribe"; "please mommy, see Paul...... I SEE PAUL"
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