Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Tuesday, January 19, 2010

*good read*

I am reading this really interesting book call 'Messenger'. It tells the story of a mother who has passed this terrible life threatening illness on to each of her four children. Three of whom pass away as either infants or toddlers. Her last son Mattie is an extremely intelligent child who learns to read at three and begins writing poetry at age 4.... Any way. Mattie ends up passing away at 13 as well, I know this because of the prologue. But, he lived each minute with the knowledge that his body would fail and that he would follow his siblings. So, he decided to become a peace maker... It is really... really neat... So if you are in the mood for a deep read... You gotta check this out.


likeschocolate said...

I saw that little boy on Oprah! He was amazing! Don't forget to watch oprah this week on Thursday. Congenital Heart Disease is finally being featured. A bunch of us last year sent her letter last year and now she is doing a show!!!! Yeah!

The Redhead said...

I saw him on Oprah too.
Thanks for taking Ellie to play today. Love ya!