Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, January 21, 2010

This is cool

This is going to be amazing.... I loved listening to Paul Cardall and all of his music buddies last year as Paul waited for a new heart. Now Paul wants to pay it forward and do his own benefit to help families with CHDs..... Go if you can!
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likeschocolate said...

I wish I could come. Wouldn't that be fun. Maybe next time. Sorry about the mis-information about Oprah. Next time I will double check my info before passing it along.

Heart Mommy said...

Oh dang, the CHD show didn't air? I missed it any way. Or was it about Mattie? That info was spot on.