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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, February 18, 2010

Events

I am going to write in sequence to the events, although I should just say that this is going to be a looooonnng post. I had a great birthday palooza... I call it this because it keeps coming around again and again... It is like a birthday month instead of just one day. In fact today we celebrated at Chic-a-lay (what gator calls it) Nearly two weeks past the date... So thanks everyone... Then came Monster Trucks. The event of a lifetime for the Gator-man. I think he dreamt of sweet-crushing-car-nothings all night after that..... The funniest part was when it started he was so mesmerized he sat and watched and hardly breathed... He was in complete rapture. Then they started crunching and rev-ing those loud engines and he was in hog heaven. We spent the outrageous/well worth it price for the Grave Digger hat-cotton candy and he loves it. The wheels can be removed and he thinks that is pretty cool too. We loved that Monster Tracker comes from right here where we are from and cheered extra loud for it.... Monster Tracker even won one of the events... The motocross team was there and totally impressed us again with all those "sweet" moves.... When we talk about it, we always use our announcer/monster truck voice. Then Sunday we enjoyed a happy Valentines/Heart day... On Monday we went on a date to the Paul Cardall concert... Can I just say WOW! I loved all the performers, especially Paul and Peter B. They played one song "old school" and had everyone who had a phone/lighter, light up the hall like little stars... I loved it... Life is amazing... The only thing I worried about was Gator who was puking his guts out on Grandma..... That night he became increasingly sick. Tuesday we worked all day trying to get him well... He had a fever, chills, a strange rash, vomick and Dia-ruppass-of the Bum-pucker-ruttes. I am always amazed at how fragile he becomes... Wanting to be held all day and getting irritated and agitated one minute and then powering through it and playing on the floor the next minute... The best part is that he stayed potty trained even though he spent a great deal of time on the potty. We ran a few times and thought about which end to put over the potty? That night daddy had meeting and things he needed to do... I was just planning on taking it easy and holding down the forte. I new things weren't good when I took his temp and read 103.6... So off to the church, daddy and brother J. administered a blessing that comforted momma more so than Gator I am sure. Anytime my nerves are shot, and I have hit my "it's time to worry" point. I know is a fine balance at the Doctors office... I can either completely freak out and not be taken seriously, or I can become too docile and be taken as a momma who is heartless. Upon arriving at the insta-care (closest thing) I gave information so fast the secretary had to ask me many times what I had said. Then we waited in the chairs. I think it took ten-ish minutes but seems like hours... Once back, the nurse checked temp, then got the pulse ox out... Gator was about 73. The nurse looked confused...(I know it is mean, but I kinda like them to worry a little about him... It's the; lets take this momma seriousness that I crave) So she re-checks in another spot and he is 72... "Not great" I said "but not too far off of his base, remember I told ya he's a little heart baby"? You could almost see the relief on her face. "I have never seen anybody that low before!" The Doctor came in, took one look of his 'worrisome' rash and said she wanted to do a Strep test... I didn't know there is a rash associated with Strep.... Yes, there is and it looks just like the one he has. Few minutes later and RX for antibiotic and we were on our way to get meds and some Popsicles. Everyone just cross your fingers, toes, arms, and eyes that he doesn't get C-diff. Ry woke the next morning complaining of a sore throat so we made an appointment with the Ped... No problems with her... she is just the carrier. Now it has been recovery and disinfect at our house... His strength is not all the way back. His eyes still look tired and he takes two naps a day. It takes about six hours for most to start to feel better from Strep... It is taking so much longer for my little man. Days instead of hours...



Smooches
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6 comments:

Kara and Cody Markham said...

Monster Trucks wow, that looks like fun. I have always wanted to go to one those.
Im sorry to hear about the strep, no fun. You guys will be in my prays. Love you and I hope everyone gets healthy quick!

likeschocolate said...

Sorry your little man was sick, but he looks so adorable in his hat from Monster Trucks.

Becca said...

It was so good to see you guys at the truck show and Paul's concert. So sorry that he is feeling sick. I know the feeling of "do we panic yet?" It's hard not to with these heart babies. Hopefully he will feel better soon!

Lance and Raegan said...

I love the truck hat, we have them here too. I love that Ry wore here purple jewels to the event....go in style or go home..right? Sorry that your Gator man is sick. Hope he feels better soon. I called you today to see if Ry could come play..no answer...we'll try again next week!
Happy Birthday to you!!!!!!!!!!!!!

Lacey said...

Ok, I do know how to sew blankets, but I so did not get what you mean with the suction! I'm such a ding dong! You might have to show me. I did go buy some material to try and sew a small bag, I may have to refer to my mother in law for that one because she does sew. You'll definitely have to show me!

joey said...

Love chick filay with you and the chicken nugget soup! Hope Gator is still on the mend! =)