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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, May 23, 2011

Hope Kids Birthday

Munchie gets pushed around in the stroller.
Even though he looks grouchy he is having the time of his life. He didn't want to stop for me to snap a picture. He needed to stop and have a teeny rest. Look at those blue lips.
Best Daddy ever! Probably should have been working, but came to spend time with his family.
Our Roller derby princess.
HopeKids treated us to an amazing event. Every year they have a birthday bash. We get to do all the neat things at Classic and we get to spend time as a family. They also bring out a cake so that each child gets to blow out a candle. There are even gifts for each Hope Kid. This year Alex got a motorcycle race track. It is awesome and he plays with it a ton. Thanks Hope Kids. (again no pictures of me... Well at least I know what I look like)
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