Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, May 23, 2011

Womens' Heart Luncheon

This years women's luncheon was amazing. I think they get better every year. I helped organize glitter toes by calling on our favorite hair school, Taylor Andrews. These lovely gals donated their time to come and pamper us. The school and students are always so willing to help out IHH. It may have helped that Cafe' Rio catered the event. Who could pass up a free sweet pork burrito/salads?

I didn't get one picture with me in it of course! (always behind the camera) But here is our friends Arianna's mommy and grandma. Munchie came as my guest. I should have brought my mom or Jeff's. Both have been so supportive and helpful through all of Gator's surgeries and really his whole life.
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1 comment:

Nick Tierney said...

Heart Mommy:

My name is Nick Tierney, with HealthTheater Networks. I just discovered your blog Joined by Our Heart Strings, loved your content, and thought we might have something to contribute.

We are a top health video production company with several videos about different aspects of cardiology--all featuring real people telling the story of their personal battle with the condition. In fact, we just filmed a few new powerful stories on heart murmurs and arrhythmias in teenagers.

Feel free to check out my favorite one here:

We are interested in syndicating these videos through our player to your website, for free, in exchange for the targeted visibility that exposure on your site would provide.

In addition, although we have little content in the area of congenital heart defects, we are always interested in filming new diabetes stories. If interested, would you be willing to share video content with us about your story, and/or congenital heart defects?

If of interest to you, could we please schedule a short call to explain further?

Thank you,


Nicolas Tierney
Dramatic Health
45 Rockefeller Plaza, Suite 2000
New York, NY 10111
Office 212 332 7132
Mobile 203 912 6179