Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, June 20, 2011


Can you believe that we are heading out to sunny FLORIDA in just two months.... We got a call from Make A Wish that told us that the Disney Cruise could be scheduled for Jan 14th. With Gator needing his Fontan in the fall it was a little too far away. So we talked to Gator about it and he decided he really wanted to see Micky Mouse club house, and Lighting McQueen. This would be a dream come true for him. So our official dates are first week in August. We can't wait! I like that my little man is flexible. There is a wonderful school that raised a bunch of money and actually set a record for an elementary schools. As a reward the school kids got to throw (whip cream) pies in the faces of their teachers and the principal. We were invited to join in on the fun as one of the families that they raised money for. The other two kiddo's are Gator's heart friends Jax and Arianna. These three have even been in the hospital at the same time. They are all pretty close to the same ages.

Gator loved the pie action, our family got up in front of the school and talked about Gator and his broken heart. Then when I was all done I told the school that Gator had something to tell them... At first he said "I can't remember Mom"... then in the mic he said..."Thank You!" and the kids all cheered. It was a fun event.
Such a great daddy. He held Gator for all the kids to see, since he is such a short little man. Gator waved at everyone like he was a celebrity.

Here is Gator with one of the coordinators for Make A Wish, she also works at the awesome school.
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1 comment:

The Simmons Family said...

Yeah!! So you're going to Disneyworld?? You'll have to let us know how amazing it is because we're wish tripping there in December. Love allt he pictures and updates.