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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, March 13, 2014

Early lights out

7:30 and my sleepers must need some catch up rest... The other two are snuggled together watching a show downstairs. The sun hasn't even gone to sleep yet.. 



1 comment:

cici said...

ahhh to sleep like a babe again!

Sleep tight little one