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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, March 30, 2014

Little weekend review


Ry and daddy went to North Carolina last week. Jeff had a business conference there and his brother and family live there. We don't get to see them nearly enough so we decided to send Ry so she could be with her cousin Grace. They had a total blast. 
On Thursday Alex was awarded the Builder award. His school gives these awards to students who do exceptional things. Alex was nominated as the Builder for Listening to understand. We are so proud of you buddy! 


On Friday I was looking for something to keep this boy chill for five minutes... It made him happy and quiet for 3 hours. He kept saying he was engineering things.




Daddy brought bracelets home for Eden that you can decorate and add stickers to. She loved the sparkles. 

The Walker girls, Ryleigh and me, and Angie got to go down town for women's conference. A historic event as Ry was able to join us. 

And right this minute Gator and I are sitting in the RTU eating popcorn, Doritos, and chocolate Reese's peanut butter milk shakes and playing Cars Memory, watching movies and getting IVIG... 


This is called the rocket ship, it makes a noise like one is taking off. It also makes it so his IV doesn't hurt. It's awesome. 
Tomorrow he has an echo and clinic... Wish us luck! 

Thanks to Jeff and my mom who are holding down the forte and managing the girls. 









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