Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, March 16, 2014

Over the moon

When our friends and Jeff's business partner Nic and his wife Marti, approached us with the idea of doing a fundraiser to support all the medical expenses accociated with transplant I was very.... Unable to communicate my thoughts because....  I was embarrassed I couldn't provide alone. I was scared because the amount of medical care costs are enormous. I am humbled that there are so many willing to help shoulder the burden. I was floored by the generosity of others. I am surprised by the acceptance of friends young and old who patiently try to understand exactly what is going on. I am buoyed by so much verbal love. I am so grateful that someone took this heavy burden upon themselves and Marti,( who is an angel straight from heaven) could mastermind and organize then call other earth angels or Gators Groupies to help out. Then there is all the supporters! We have appreciated each and every prayer, good thought, mojo, rain dance, good vibe, monetary donation (absolutly incredible), visit, baby sitting, meal, phone call, nice word, play date.....The list goes on and on and on... 
In some ways I want every single person I know to feel and experience this out pouring of generosity, kind heartedness and love. I would hate to wish the rest of this experience on someone else. 
I tried to explain how this all feels to a friend. How I wish there was more than thank you to express how grateful I am. She has wisdom that made me just hug her.. There will be a time when we are able to serve and give all this love to someone else... You better believe I will too...
My eyes leak all the time now... I am sure it's because there isn't any more room inside me... Love, graditude, humility, and a little crazy leak right out.

Jeff wanted to let all those who annonymously gave to know... Because we can't give you a hug or send you a thank you card... We thank you dearly!!! 


Kelleyn Rothaermel said...

You should never feel bad about not being able to provide all the funds yourself. The cost goes above and beyond 99% of the populations. Who had that kind of money sitting around. Anyway, isn't that why we have each other! We are meant to serve one another. Hugs from Georgia!

Kelsey Brown said...

Let me know how I can help, and when it is. I know a few people who would love to come and/or donate.