Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Friday, September 12, 2014

Miller million miles..

I was excited to see Jeff ride in another century, I was even more excited when I found out it is a benefit ride for Make A Wish.. And the best news of all is the kids were invited to do some fun things while we waited for him. 
this was a fun bike parade that Gator walked in... he loved it anyway.
They had a crazy awesome face painter

The kids tried the climbing wall
we even did chalk art... or posed with the fantastic art that was there.

The princess's even came. It was so funny because Eden saw Anna first and ran to hug her. Yelling her name with her arms open... when she was about two yards from her she spotted Elsa and ran right past her to hug Elsa instead. Poor  Anna was left wondering what that was all about.
we even gave bear hugs to the Jazz Bear

Jeff did fantastic on his ride... 
Thank you Larry H Miller and Make A Wish

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