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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, September 10, 2014

We've been doing good

Last week was a whirl wind. 
Gator's PICC replacement went great. He only had one hiccup. He went into SVT when they moved him from the table to the bed. SVT=super ventricular tachycardia=really fast heart beats.
Just as they were calling support, Gator auto corrected. 
Now we are good as new! 
Leaky PICC.. Above the purple and white things is were it was broken. 
Passing time NPO----
He just got his CHG bath.. Before any procedure he gets a special bath to help keep the germies away. 
Tempted to put mascara on these bad boys. 
New PICC
He has to watch everything with one eye closed. He tells me I have four eyes and two noses when he wakes up. 
Feeling good
Really good!!!














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