Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, September 29, 2014


Riding in our swagga wagon, picking up some ice cream.. 
Word to my peeps!! 


likeschocolate said...

I hardly recognize you ! You are getting so skinny! You always have swaggar.

marti said...


auntiejenni said...

you are SUCH A CUTIE-PATOOTIE! love those highlighted curlies. love you, little girlie. your family is in my every single solitary utter prayer. LOVE YOU ALL SO MUCH!!!