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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, February 19, 2015

Miss MayLee May

Whooohoooo! Yesterday May had an appointment to check her tethered cord syndrome. We have a new neurosurgeon because our other one finally retired. 

She insisted that both she and I wear a mask. She laughed at the Doctor while he tapped on her for reflexes. She wouldn't do the other strength tests, I don't think she understood what he was asking her to do. Or maybe she was doing the "I will pretend to be shy even though I am not". Her spine looks great for now.. She is clearly meeting all of her development goals. We get to go another year before we see the specialist again. Also,  He asked if she was potty trained yet.. 

Sigh*** 

nope..

 But she is interested so today we did this. 


She made it to the potty three times and had two accidents. It's time for my least favorite parenting job.. We can do it.. It's more training me right now than her anyway:) 
Everyone needs a stool. Just say'n!!



1 comment:

jackie said...

Hoo Ray for Miss Mae!!

Good luck with potty training.