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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, February 17, 2015

Results are in!!!!

What a busy day! Got up at 4:35... Who even knew this hour existed outside of my home/bed? Because of the insane hour, nobody was on the road. It's like a perfectly great driving time. We made incredible good time to the hospital. We were so early we parked and snoozed in the car till 5:45. 

Power nap!

We checked in and they isolated us because of Gators C-diff status.. Although that is resolved now. I sort of liked not having to worry about the other germs that could be in the waiting room. Alex was worried about a lot of things... Like wearing hospital pjs. He doesn't mind the comfy pants, the shirts that tie and snap are just so breezy... I let him wear his cozy jacket... Whew! Then he wanted to know if they could please poke after he was asleep? That wasn't a problem either. He picked Root Beer for his "air" we walked down to cath lab.. He strolled in like a boss, told jokes while he drifted off (his material is sort of getting old) but the cath lab hadn't heard them so he was good. We will work on some new material for next biopsy. I ran over to grab some oatmeal for breakfast, then went back and fell asleep in the imaging waiting room. I startled awake to the pager, ran back to cath... Heard news that his pressures looked a teeny bit better than last time. That is a forward baby step. Hurray! Then up to recovery. Gator was smiling and talking... He felt pretty darn great..... We hung out while he recovered... We were going through the last bits of discharge with the incredible Dr. Lal when we realized he still needed an echo. My fetal echo was supposed to be going on as well. So Gator boy stayed put for his while I rushed over to Eccles for mine...


Bonus baby brother looks awesome. Dr. Mennon said he was happy to say that they are pleased with how the baby's heart looks. I was still so tired from the morning I snoozed through the last portion. Although I tried to be impressive by asking Bell (we've known Bell ever since Gator was a baby) if I was correct in my reading of my fetal echo. I nailed it! 

I ran back to discharge Gator! We surprised Grandma Clawson with our earlier then planned arrival. Which meant we got to hang out with her for a while. I even got a little nap.

Gators biopsy results came back CLEAN! His echo looked great! 

The prayers, good vibes, positive thoughts, crossed fingers, and every other good thing everyone has sent our direction is so appreciated. 

This cookie cake from Howey's was divine! Decorated by 15 year old Britton... A heart-brotha-from-a-notha-motha!!! Thanks guys!


2 comments:

Little Farmers said...

HOORAY!!! I kept checking the FB pages to read the results!!! Couldn't be any happier for all of you!!! I LOVE Alex's jokes and his positivity!!!!

jackie said...

Wow all that news is great!